Improving your care by sharing information with others looking after you
Healthcare organisations across Leeds are working together to further improve health and social care
across the city. Health and care professionals have a duty to share relevant information between themselves if they are involved in providing you with care. For example, in Leeds you have your own Leeds Care Record.
Follow this link to find out more information about your health and care records.
Your GP regularly uses information from their records and those held in hospital to ensure that you get the right personalised care and have access to the right services. This would include looking at any recent hospital treatments along with any existing health conditions that you might have. This may alert your doctor to the likelihood of a possible deterioration in your health. The clinical team at the surgery will use the information to help you get early care and treatment where it is needed. The information will only be seen by qualified health workers involved in your long term care. NHS security systems will protect your health information and patient confidentiality at all times.
Patients have a right to opt out of their information being used for personalised care management. For more information and/or to opt out please speak to your GP
We are part of the Leeds Care Record project. Leeds Care Record is now in live use. We will share key information from your record with other people providing direct care for you, for example Leeds Accident & emergency department, outpatient clinics, district nurses and social care. We already share information of this sort, but mainly on paper or electronicially at the time of making a referral. By the time you are next seen in clinic this information could be out of date, for example if you've changed your medication. The Leeds Care Record will mean that those people caring for you will have up to date information. Protecting your confidential information is important to us and we are working with the others involved in this project to ensure that.
What is the Leeds Care Record?
At the moment, every health and social care organisation that you use has a different set of patient records for you. These records may duplicate information or one record might hold information about your treatment, care and support that another one doesn’t.
What kind of information will be shared?
In Leeds, we have developed a virtual system called the Leeds Care Record. If you live in Leeds you will have a Leeds Care Record created for you. It will be held on a secure computer system and will include some key health and social care information about you. The information is taken from other medical records you may have such as your GP record, hospital records or social care records.
The Leeds Care Record will hold certain information about each patient so that whenever you are being treated or cared for by the NHS or adult social care services the people looking after you will have the most up-to-date information:
Address and telephone number – so we have one set of contact details for you.
Problem diagnosis list – to make sure your health or social care professional has a complete record of your care.
Medications – so everyone treating you can see what medicines you’ve been prescribed.
Allergies – to make sure you aren’t prescribed or given any medicines you could have an adverse reaction to.
Test results – to speed up your treatment and care.
Referrals, clinic letters and discharge information – to make sure the people caring for you have all the information they need about other treatment you’re having elsewhere.
Why do you need to share my information?
GPs and other health and social care professionals will be able to provide much better support if all of the information they need to know about you is available in one place. When information is shared, it means you won’t have to keep repeating the same information to different professionals. It also means your care will be safer because health and social care staff will be able to see information about the medicines you have been prescribed and any allergies you have.
There are benefits for the health and social care system too. By having instant access to the information they need, the people caring for you won’t have to spend time phoning around different organisations. They’ll be able to do their job safely and more quickly, making services more streamlined, cost effective and efficient.
Can anybody see my records?
No. Your medical records will still be confidential. They will only be looked at by people who are directly involved in your care. We won’t share your information with anyone who doesn’t need it to provide treatment, care and support to you. Your details will be kept safe and won’t be made public, passed on to a third party who is not directly involved in your care, or used for advertising.
How do I know my records are kept secure?
By law, everyone working in, or on behalf of, the NHS and adult social care must respect your privacy and keep all information about you safe.
The Leeds Care Record will be held on a secure, encrypted system at the Leeds Teaching Hospitals. The system keeps a record of everyone who has accessed a patient record, the time and date when they accessed it and the information they were viewing.
The laws on data protection are clear and we take them very seriously. We regularly check to make sure that only people who need to see your patient record are viewing it.
Can I opt out of my records being shared?
Yes, you can choose not to have a Leeds Care Record. It is your choice but sharing your medical and social care information through a Leeds Care Record will make it easier to provide the best quality care and support for you. If you have any doubts about your records being shared you can talk to your GP in the first instance. If you wish, we can ensure that your GP records are not shared outside the practice. You can also contact the information governance team at the Leeds Teaching Hospitals NHS Trust. Their telephone number is 0113 20 64102 or you can write to:
Access to Health Records
Leeds Teaching Hospitals NHS Trust
St James University Hospital
Lincoln Wing/Chancellor Wing Link Corridor
Can I access my Leeds Care Record?
Patients have the right under the Data Protection Act 1998 to request access to any information that an organisation holds about them. This includes copies of paper, electronic and hybrid patient Health Records. A copy of this can be requested via the Trust website and information about this can be found on the Leeds Teaching Hospitals website - www.leedsth.nhs.uk - under the Freedom of Information heading or by writing to the address above.
Is this the same as the Summary Care Record (SCR) or care.data?
The Summary Care Record consists only of medication and allergies and can only be accessed at time of emergency or unscheduled care.
The care.data extract will be used for secondary uses such as national and local planning.
The patient opt-outs for these three services are completely separate. You can opt in or out of theses services individually.
If you have already opted out of SCR, you will not be automatically opted out of care.data or the Leeds Care Record.
You can view the Leeds Care Record website.